Eczema Baby Scratching – Now Not Scratching

http://www.indiegogo.com/solveeczema
Eczema itches. Quality of life studies say even mild eczema can be as miserable as severe eczema, because no one sleeps. Babies don’t sleep, siblings don’t sleep, parents don’t sleep. It affects health and development. None of the studies quite hits home like this 2-minute video, sent to me by a mom who used the web site to help her son. I’ve edited out a long segment where baby Zack just digs at his neck, but it’s still hard to watch. Stick with it ’til the “after” photo, though (note: it’s silent, there’s no music):

Please help me to help more babies like this one. If you can, please make a donation to my crowdfunding project. The hope is to fund a medical study, but that level of funding would take high visibility on the crowdfunding website. If you can’t afford much, even $1 will make a huge difference in whether the project gets the visibility to attract other contributors, and you can keep your name and amount anonymous. You can donate at:
http://www.indiegogo.com/solveeczema
It ends February 29, just weeks away. Thanks so much for all the moral support and support so far!

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New Developments for SolveEczema.org

1) A Video Slideshow Overview of SolveEczema.org (see previous blog post)

2) Suspension of affiliate marketing/the shop page. It’s purpose was to find support to focus my time on the work, but I found being success at monetization would have taken far more focus, thwarting the original intent. The work of the website takes precedence.

3) A crowdfunding project on Indiegogo.com to support the work so that I can focus on finishing a book at a minimum, and take whatever concrete steps toward a medical study that the project support allows.

I WOULD VERY MUCH APPRECIATE YOUR SUPPORT AND/OR HELP SPREADING THE WORD, if possible. Even small donations will help! The crowdfunding project ends in February; the earlier the support, the better!

http://www.indiegogo.com/solveeczema

A.J. Lumsdaine

VIDEO: Slide-show Overview of SolveEczema.org

Off-Topic: STUFFING RECIPE — Gluten-free, egg-free, dairy-free, sesame-free, soy-free, nut-free, and yummy. Oh, and vegetarian!

This is my husband’s (and probably Better Homes New Cookbook at some early point in the process) contribution to humanity for Thanksgiving. Stuffing that is gluten-free, egg-free, dairy-free, sesame-free, soy-free, and nut-free! And vegetarian. cornucopia

We made this to accommodate all of the allergies at last year’s Thanksgiving dinner, and guess what?! All of the non-allergic people loved it so much better than the award-winning Sunset stuffing (I mean, the one they said they get more requests than any other recipe for), there were lots of leftovers of the Sunset stuffing and not a crumb left of this! (Sorry Sunset!) People asked for the recipe, so here it is:

Stuffing:
1 C. chopped celery (4-5 stalks?)
1 C. chopped onion (~1 medium onion – red)
1 tsp dried sage
2 bell peppers chopped (we probably used the sweet ones from Borba Farms)
2 batches corn bread croutons (see recipe below)
2-3 C. vegetable broth (we used the low-sodium veggie broth from Trader Joe’s)
1/4 C. chopped flat leaf parsley

Saute chopped vegetables in olive oil until soft. Mix vegetables, sage, parsley, and cornbread croutons in large bowl. Stir in veggie broth until wet but not soaking. Bake at 325 degrees for ~40 minutes until browned lightly on top.

Options: Could add sausage, apples, or — if not allergic — nuts.

Cornbread Croutons for Stuffing:
3/4 C. brown rice flour
1/4 C. amaranth flour
1 C. corn flour (not corn meal)
2 Tbs sugar
1 Tbs baking powder
1/2 tsp salt
2 egg-equivalent egg replacer (we used Ener G), mixed
1 C. water (could use milk if not allergic to dairy, but we used water)
1/4 C. oil (olive oil tasted good)

Mix dry ingredients. Mix egg replacer separately and add to wet ingredients, then add wet ingredients to dry. Mix well and pour into 9X9X2 or 8X8X2 pan (greased). Bake at 425 for ~25minutes. Won’t make very good corn bread but is great for stuffing or croutons. Split the loaf horizontally and cut bread into 1/2″ to 1″ cubes. Dry cubes on cookie sheet at ~250 degress, turning occasionally until dry and crispy.

And please don’t forget to donate to my Indiegogo crowdfunding campaign to support the furthering of my work with SolveEczema.org!!
http://www.indiegogo.com/SolveEczemaorg-Fund-a-Medical-Study-to-Prove-an-Already-Working-Solution

SolveEczema News

This is an experiment — like everything else I do, it seems — in crowdfunding, through Indiegogo.com, to see if I can find funding to focus full-time on making a medical study of the solution on SolveEczema.org a reality, write a book and start a related social business.

I tried a mini-blog-pledge drive awhile back, but I find unless people can see where the funds go, most people vastly overestimate the funds that come through blog donation links and figure someone else is donating. And…

Maybe it’s my somewhat ascetic upbringing, but I have real problems asking for … money. There. I said it! It’s why I haven’t gone the non-profit organization route, because once you go non-profit, most of what you do is keep asking people for money.

Over the years, many people have offered to help, and mostly, I haven’t taken them up on it. I’ve put up a small donation button, I’ve recently experimented a little with monetizing the blog to try to generate some passive income from recommendations I already make, but I haven’t had the time to really make much (literally) of it yet. So far, my minimal monetization efforts have made little more than change.

A medical professional once told me that my reticence to ask for or make money related to this endeavor was depriving people I could be helping of that help. He had a point. Earlier this year I spent some time deciding whether to go the social business or non-profit route, and for the above reasons, decided on social business.

Still, the first and most important goal is the medical study. And doctors are much better than I am of asking for money for their professional services. It’s hard to get money for a medical study without a doctor, and hard to get a doctor without money.

And while I am working on that, I have to find a way to make this my job. I don’t need a lot, but so long as I can only afford to do this as a hobby, that’s all I’ve been able to do.

Since putting up Solveeczema.org and this blog, parents have told me they couldn’t parent normally before they implemented the solution on Solveeczema.org, or that their children never lived a day without pain or slept through a single night because of the intense itching, or that they suffered life-threatening infections, or were ostracized by other children and adults. And they tell me what a difference it makes to really, truly see and understand where the previously random-seeming outbreaks come from and how to prevent or eliminate them, to have control over what had once controlled them. Many parents have described how asthma was ameliorated or eliminated along with the eczema, as the underlying basis would predict, and which also deserves further study.

It hasn’t been all one-sided. This endeavor has been extraordinarily meaningful for me. I never would have predicted wanting to do anything health related professionally. But now I would consider it an immense privilege to be able to do something that helps far more people. Please make a pledge if you can:

(Since my links to Indiegogo don’t seem to be showing up on my blog feed, you can find my campaign by going to http://www.indiegogo.com, and searching on Solveeczema.org or just eczema. Thanks.)

Unauthorized use of Solveeczema.org: Not my rant

When I first began this blog, I posted a wonderful letter of feedback by Katrina Featherston, who gave me permission to post it on my blog, which is copyrighted.

http://solveeczema.org/eczemablog/?p=363

For some reason, this post has been copied by many others on the Web without permission.

I have not authorized any of these uses, especially one particularly bad one on a web site called m e d e c i n e d o c t o r s [dot] i n f o. PLEASE DO NOT GO THERE. I would ask my readers to please not look for that site, because just your linking to it or viewing it will give them a higher ranking with Google. However, if you are using Google to look into Solveeczema.org, please be aware of it and don’t use it!

They not only borrowed the letter, they used my web site name, Solveeczema.org, then added a rant to Katrina Featherston’s letter — an anti-doctor anti-medicine rant that is neither from me nor Ms. Featherston, but the site so makes it seem so, I consider it libelous.

My husband and I couldn’t have done what we did without the wisdom our healthcare practitioners imparted and the help and support they gave along the way. I think everyone should have that kind of medical support.

People who use my site are sometimes discouraged by their experiences with the advice available for treating eczema, but I make very clear how important it is for people to have a good relationship with a doctor before embarking on any changes as outlined on the site. If people do have an antagonistic relationship, I usually ask if there is any way to switch to a doctor they could work with. There are many, many doctors out there who will work with patients, and who are wise, helpful and (necessary for working with the site) able to keep close tabs on people’s safety and personal medical situations through the changes I advocate on the site.

Although I am working on trying to see a medical study of the Solveeczema.org solution, there is currently nothing like it in the medical literature and doctors cannot be held responsible for not knowing what has not been published in peer-reviewed literature. I have even heard from doctors who used my web site to help their own families.

I don’t know what the motivation of the abovementioned web site is to steal my material and misrepresent it and me, but there is no name associated with it and no contact information for me to ask them to stop. Please realize that the site is in no way associated with me or my site, and that the rant they attached to the letter they stole from my site has nothing to do with me.

Where to Find Non-detergent Shampoo

When Solveeczema.org users ask me for choices in non-detergent shampoo, in the past, I had little to say. The best one I had tried was Cal-Ben’s. But, different people have different needs and preferences.

I just looked at the Environmental Working Group’s web site. In the shampoo category, many products listed as the safest are soap-based. The great thing about the Environmental Working Group’s web site is that ingredients are listed for most products.

I haven’t tried any of these, but they are mostly castile-soap-based with very simple ingredients and thus should be safe for Solveeczema.org users.

Note: not all shampoos listed as tops in safety are soap-based, as you go down the list, some are made with sugar-surfactants (of which I’ve heard mixed reviews from Solveeczema.org users, I continue to reserve judgement for now), and as you go further, the more and stronger the product detergent bases.

In general, Environmental Working Group’s web site is a great place to look for safe products.

When We Don’t Know What We Know

We know this stuff, and yet, why don’t we add it up?

Even my sleeping bag label tells me to wash it in mild “non-detergent soap,” because the makers know the high-tech fabric will lose its water repellency — become more permeable — from detergent residues.

Some researchers use detergents for transdermal drug delivery (getting drugs to absorb through the skin).

detergent pollutionHere’s something I just stumbled across on an environmental company’s web site:

“Detergents also add another problem for aquatic life by lowering the surface tension of the water. Organic chemicals such as pesticides and phenols are then much more easily absorbed by the fish. A detergent concentration of only 2 ppm can cause fish to absorb double the amount of chemicals they would normally absorb…”  (Photo of detergent pollution thanks to U.S. Fish and Wildlife Service.)

Read more from the above company site at: http://www.lenntech.com/aquatic/detergents.htm#ixzz1YCiQinWP

It’s not difficult to see that under such conditions, the skin is also a less capable barrier against pathogens.

Lastly, here’s a detailed and alarming study looking at concentrations of synthetic detergents and pesticides in surface and groundwater in India:  ”The synthetic detergents (or surfactants) and pesticides are the two most common group of chemical compounds that are increasingly being used in modern civilization. Surfactants are common contaminants of aquatic environments due to their large consumption in all types of washing and cleaning operations”. [NC Ghose, D Saha, A Gupta, Synthetic Detergents (Surfactants) and Organochlorine Pesticide Signatures in Surface Water and Groundwater of Greater Kolkata, India, J. Water Resource and Protection, 2009, 4, 290-298 doi:10.4236/jwarp.2009.14036 Published Online October 2009.]

I could go on.  We know all this stuff, and yet … it’s as if we don’t remember the minute we’re in a different sphere of life or work.

(Thanks to Free Nature Photos for the image of the Aussie Tree Frog

http://www.freenaturepictures.com/frog-pictures.php)

 

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Big news on the research front from England, still more work to be done

Noted dermatology researcher Dr. Michael Cork in the UK will soon be publishing an article linking detergents with eczema, a continuation of his long-standing work. I am thrilled for this verification of what I have been saying all along.

          Unfortunately, if the popular press article I read tonight is correct, the study still does not differentiate between detergents and soaps. I have mentioned Dr. Cork’s work in the past; his recommendation has been to remove all surfactants, soaps and detergents.

          While removing all surfactants may work in time, I personally find it takes much longer than using true soaps and the results are not as satisfactory. Being able to “wash off the eczema” with soap as described on my site is important to allowing children to maintain a normal life and skin after exposures they can’t control, not to mention simply giving people a way to get clean that doesn’t cause the eczema. Knowing they can keep themselves and their homes clean by changing what they wash with, rather than eliminating all washing products, is a big deal to most people.

          I also have a very different take on what causes dry skin and eczema, and why people from atopic families are more affected.  That is a topic I need to write far more in detail, but I’ve come up with a short way to convey the basic idea (please forgive my giving it a title, it’s a way to hopefully make it memorable):

Lumsdaine’s Law:  For most people, under most conditions, eczema and dry skin are more the result of what is on the skin than what is stripped from the skin by washing.

          I include a link to the Daily Mail  article about Dr. Cork’s groundbreaking publication below.  Here also is my letter to the reporter who wrote the article:

Dear Mr. Utton,

I appreciated reading your well-crafted article “Soap linked to childhood eczema – study.”  The article does a beautiful job clarifying a difficult-to-explain topic (and make interesting as you have done).

I would like to take issue with your assertion that “…despite the recognised hazard of detergents, no one until now has made a connection between their increased use and the rising rate of eczema.”

Please see feature article about my web site in the magazine Allergy & Asthma Today, “Hidden Link Between Detergent and Eczema,” 2006.

As long ago as 2004, I was quoted in a newsletter of the Eczema Association of Australasia saying, “Finally, in researching this problem, I’ve discovered that our solution is consistent with what may be the solution to the overall problem of rising infantile eczema and asthma. … The only theories about it are that we are too clean, the so-called hygiene hypothesis. As for the studies that ostensibly support it, they typically demonstrate a more direct causal link with detergent use than lack of germs.” [emphasis mine]

I have for years been helping people around the world solve their children’s eczema when nothing else worked.  Tens of thousands of people over the years have visited my site and blogs.  I have even heard from doctors who used my web site for their own families.  Many doctors have told me they refer patients to the site, and at least one allergy clinic in Atlanta has permanently linked to it.. .  Interestingly, I mention Dr. Cork on my web site, because as far as I’m concerned, he has been the closest to right of any academic researcher for all these years.

Because I am an engineer and writer, and not a medical researcher, I am limited in what I can ethically (and legally) convey through any of the above publications, but I did discover the cause through empirical problem solving and personal research years ago, have a more nuanced view, and noticed early on that people with atopy were most likely to be helped by removing detergents (and wrote about it).

And although I have a somewhat different take on the why the eczema happens and why people who are genetically linked are susceptible — and I believe there is considerable support for my interpretation in existing medical literature — and I differentiate between soaps and detergents (the use of true soaps actually declined then leveled off as the use of detergents skyrocketed), I am also glad for academic verification of the basic premise of what I have been saying all along by such a respected and careful researcher as Dr. Cork.

Kind Regards,

A.J. Lumsdaine

Read more:

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Solveeczema.org in Summary

Soap is not the problem, it is often the solution. Image: Sujin Jetkasettakorn / FreeDigitalPhotos.net

My understanding and philosophy about eczema have changed and grown over time. I’m working on updates to the site — and working on a campaign to fund a medical study, stay tuned — but here’s what I believe in a nutshell:

First, these are my opinions — based on an extensive review of medical literature and much discussion with chemists, microbiologists, medical professionals, and many, many parents of children with eczema over the years, but my opinions nevertheless, not accepted medical views. I am not a doctor.

Based on everything I have seen and read, I believe the majority of infantile eczema results from high levels of (often unrecognized) detergents in the environment, especially the home environment. These substances affect the permeability of skin, have a startling physiological impact at even very low levels of exposure, affect people in “atopic families” more, and are absorbed at much higher rates by infant skin. Detergents increase skin permeability, antigen penetration, and thus antigen load. (I describe what I mean by detergents on the web site, it’s not what most people think.)

As children get older, their skin becomes naturally less permeable, they spend less time with their faces on their parents’ clothing and against their hair, and less time crawling across surfaces, and can seem to “outgrow” the eczema, but a lot of these children will go on to develop asthma and allergies, the so-called “atopic march”. As they go through these transitions, kids are also becoming more active, and breathing in more and more — to sensitive lung tissue, the optimal function of which depends on biological surfactant — large amount of synthetic surfactants from indoor environments (dust comprised mainly of skin cells, lint, hair, etc., all of which come with detergents in modern environments).

I have observed and heard over and over again in the years since I put up my site that:

1) When people make the changes I recommend on my site, not only are they able to get rid of the eczema, they go from thinking of it as a random problem to understanding exactly when and why their families are affected, how to prevent breakouts, and how to end them quickly if the exposures can’t be avoided.

2) Along with eliminating the eczema, people see the skin begin to heal and become more substantial, normal, and less dry over a period of about two months.

3) Because entire households have to make the changes for them to be effective, and because atopic families benefit most, I hear frequently that changes made for the benefit of a child with eczema have a marked beneficial effect on other family members’ skin problems, allergies, and asthma.

4) If someone is very focused about it, the changes can be effected for an entire household in as little as a week. People with hard water typically underestimate the impact of water hardness on their ability to make the changes (but many persist). Even if the recommendations address the sole source of the eczema, sometimes infected eczema has to be treated for the problem to go away.

5) Most people have incorrect assumptions, particularly about how green or “natural” what they are already using in their homes is, that contribute to their difficulty coming to this solution on their own. The most effective are those who read through all the information and understand it.

I do not believe environmental detergents are the sole cause of eczema. I do, however, believe that there are only a few other causes and that those causes tie in with this one. I do not believe that there are many causes of eczema, as I so often hear — there are many “triggers” when the cause is not eliminated, but I believe there are only a few causes and that they are related by an underlying biological basis.

Our bodies make detergents for various biological purposes. For lack of standard terminology, I call them biological surfactants. One of these maintains proper pulmonary function (“surfactant” in the lungs). Biological surfactants help us control skin membrane permeability. This is why I believe sodium lauryl sulfate — a chemical analog of biological surfactants — is so problematic.

Another function of biological surfactants is to denature proteins in the blood stream. I believe this is why one segment of people gets full-body eczema from ingesting certain foods, particularly protein-rich foods like milk, especially when their guts are immature (or otherwise compromised) — the “leaky gut” phenomenon may result in increased circulating biological detergent (coupled with unnatural detergent levels in the gut and on the skin from environmental sources). Skin permeability is dramatically and unnaturally increased, antigen penetration and load increases, etc., similar to when the gut isn’t a factor.

Probiotics, beneficial bacteria, have been shown to reduce eczema rates in infants if given to pregnant women. This leads some people to try them when their children get eczema and abandon them if they don’t “work”, but I think they could be used more effectively with a better understanding of when and why they sometimes work. I believe the probiotic effect ties in with the observations I have made on my web site, and with my theories about why eczema and asthma have risen so dramatically in recent decades. I won’t go into this more here, but I would note the following:

1) Probiotics, beneficial bacteria, secrete biological surfactants that help repair gut membranes (see last paragraph).

2) We have evolved to need some bacteria to turn on certain genes in infant intestines for proper digestion.

3) In the last 100 years, we have significantly altered our relationship with natural intestinal flora and with certain fungal species, particularly yeasts, which can degrade gut membrane function under certain conditions.

4) The medical literature is full of references to antifungal medications helping in some cases of very severe eczema, but somehow not curing it.

5) Fungal organisms more closely resemble human skin cells than they do other microbial organisms like bacteria.

We do know that following some viral illnesses, children especially will develop full-body eczema — and I have seen at least one research paper describing high levels of circulating biological detergent following such viral illnesses.

From everything I have seen, people can track down the cause of their eczema and solve it. I don’t mean chase after triggers their whole lives, I mean find, understand, and have control over the underlying reason for their children’s eczema.

Here is what one mom wrote to me recently (I’m perpetually bad about posting feedback, but she graciously sent photos and permission to share, I will post them soon):

“I wanted to take a moment and thank you for your reply and let you know how successful we’ve been at clearing up our daughter’s eczema. She is now 15 months and has beautiful, clear skin. It’s not just the broken patches on her skin that have cleared up- it is her complete skin tone. Previously she always had underlying red patches on her face, even those have gone now. This is really a miracle, because we’ve tried EVERYTHING (probiotics, elimination diet, olive and flaxseed oil, bleach and salt baths) since she was a few months old and would scratch herself bloody everyday. … This is what I’ve wished/prayed/cried for, for a long time. I only wish we had found your site a year earlier.”

http://www.solveeczema.org